When I married my husband Peter, I knew he had Parkinson’s.
Helping Parkinson's Caregivers Carry What No One Else Sees
Your love runs deep.
But Parkinsons has changed your life in ways that nobody prepared you for.
The exhaustion.
The guilt.
The loneliness.
You do not have to carry this alone.
But Parkinsons has changed your life in ways that nobody prepared you for.
The exhaustion.
The guilt.
The loneliness.
You do not have to carry this alone.
Nobody Prepared You for This Part
You thought retirement would be different.
Instead, your days revolve around medications, appointments, interrupted sleep, emotional outbursts, and the constant pressure of making sure nothing falls apart.
And somewhere inside all of that… you have disappeared.
You feel guilty for being overwhelmed.
Ashamed about losing patience.
Guilty for wanting a moment to yourself.
Worst of all, the one person who would once have noticed how hard you’re working may no longer be able to see it at all.
Parkinson’s changes more than movement.
It changes relationships. Identity. Marriage. Connection.
And almost nobody talks honestly about that.
But what you’re feeling is real.
And you are not failing.
Not just as someone with a Ph.D. in Human Development.
Not just as an author or coach.
But as a wife who lived this life herself.
Today, through Seabury House Press, I help Parkinson’s caregivers find the support, perspective, and practical tools they need to carry this differently with more clarity, more peace, and less guilt.
Ph.D. in Human Development — Cornell University
Author of Love, Dignity, and Parkinson’s
Founder of Seabury House Press
Nearly 7,000 caregivers served
Speaker for Parkinson’s organizations nationwide
You Count Too.
Not because you’re doing everything perfectly.
Not because someone else needs you.
Because your life matters too.
Your exhaustion matters.
Your grief matters.
Your needs matter.
And somewhere along the way, nobody told you that clearly enough.
Not because someone else needs you.
Because your life matters too.
Your exhaustion matters.
Your grief matters.
Your needs matter.
And somewhere along the way, nobody told you that clearly enough.
A Gentle Three-Step Path Forward
Here is Where to Start
1. Free Weekly Support
Joining my email list gives you access to weekly Q&A emails about Parkinson's questions - the real questions that caregivers ask.
2. Find Your Own Center
Sign up for 21RR to really set yourself in a different place. And have the grounding that you need to feel more capable and more successful as a Parkinson's caregiver.
3. Get Personal Support
Work directly with Terri. Find answers for your specific questions and develop real strategies and plans for the long run.
Hope Returns
Every Parkinson's book you have read was written about the person who has the diagnosis.
This one is written for you.
An honest, compassionate guide for spouses and partners trying to care for someone they love without losing themselves in the process.
This one is written for you.
An honest, compassionate guide for spouses and partners trying to care for someone they love without losing themselves in the process.
What Changes When You Finally Feel Seen
You start to reappear in your own life again.
Guilt Softens
You stop treating every hard moment as proof you are failing.
Understanding Parkinson’s
You learn what the disease is truly affecting, and stop blaming yourself for things neither of you caused.
Less Alone
You finally feel understood by someone who truly knows this road.
Breathing Room
You gain practical tools, emotional support, and a steadier way to carry responsibilities without constant guilt.
Perspective Changes
You begin to see Parkinson's differently - and yourself more compassionately.
Finding Yourself
Little by little, you begin to reappear in your own life again.
Testimonials & Reviews
Words From The Families We Serve
"I can't thank you enough for helping me in my journey as a caregiver (for both myself and PWP). You have made an amazing contribution to my learning about my well-being. I will continue to reflect on our 21 RR writings and will put into action the grace and depth you have added to my life…
— Louise H.
The 'Caregiver Challenge' increased my awareness of what a PWP is experiencing in regards to emotions and experiencing life differently. The daily reflections and journal exercises afforded me an opportunity to think about my own reactions to a PWP since loss of who the person once was, is different, with still the hope of living the best life possible.
— Kathie P.
"Your responses to letters are very helpful in my journey as a caregiver for my husband. You have a gift for bringing some peace to my troubled waters."
— Sue W.
"The Caregiver Compass sessions changed my life! I was hesitant to sign up, but desperate for help. I felt myself becoming more resentful, sad and frustrated dealing with the physical and cognitive changes that came with my husband's progressing Parkinson's. I didn't want to go through my life that way. Talking with Terri, someone who had been in my shoes, provided me with strategies, tools and a new way to approach the disease, support my husband and protect my sanity and happiness. I have a refreshed outlook, feel calmer and more confident as a caregiver."
— Lynne S.
"I'm much calmer at home. I'm much less angry. I have patience. Since my bar of expectation has been significantly lowered and taken off a ton of pressure… So it's really made a difference… I'm becoming much more open with people about the cognitive changes."
— Gina
I must say this course is just what I needed and just the right time. And I have found your wisdom, your voice, your course a balm in the storm that has been so helpful to me. Whether it be the sweet letters and Q&A that come to my email; the thoughtfulness of this PP&P course; or the real time Facebook community of caregivers, I feel I’m in caring hands. And I feel I’m learning so much.
So thank you for your time, and talent, and care.
-Cindy S.
You Don’t Have to Navigate Parkinson’s Alone
Without support, caregivers often keep pushing through isolation becomes exhaustion, and exhaustion becomes hopelessness.
You love deeply.
Your vows matter.
Your commitment is real.
But none of that means you are supposed to disappear in the process.
Let's Start a Conversation
You do not have to explain everything perfectly.
Just begin where you are.
Fill out the form and take the next step toward confident and supported caregiving.